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    SUPPORTING CHILDREN WITH CONGENITAL HEART DISEASE

    January 2012

     

    Organ donation written by Leah Shah:-

     
    When I was a mum with no worries in the world I never realised how important Organ Donation in the future would mean to me.

    I myself hadn't even ever considered signing up as a donor. This was not because I was against it, it was purely because no one had ever come to me and stressed it's importance. That was until I found myself sitting in a doctors room being told my beautiful little girl was going to die if she did not receive a donor heart. The fact that there is not enough people registered on the organ donation list was against her. So as with all transplants the likelihood of receiving a donor was slim.


    It was the biggest shock and realisation to me of how important looking to the future is.

     
    Looking at what we can do to help, so other families can have some hope from someone like me being registered for organ donation.

     
    She was one of the lucky ones and she is now living to the full and has a future ahead of her. Things could of been so so different. And for that we will forever be thankful to Sofia's donor family who gave her the gift of life.

     
    I know it's hard enough to think about putting yourselves on the register but I really need to say how important it is to think of your children too. There is such a small amount of children on the register. Understandable as I know it's a hard thing to think of losing your child. But if you can find it in your power please please register them too.

     

     

    sofia sofia3
    Sofia in Intensive Care fighting for her life

    Sofia living life to the full after an amazing recovery

     


     

    Here is some information on the NHS Organ Donor Register.


    What is the NHS Organ Donor Register?


    The NHS Organ Donor Register is a national, confidential list of people who are willing to become donors after their death. It can be quickly accessed to see whether an individual has registered a willingness to be an organ donor. It can literally be a life-saver. So that in the event of your death there's a chance that your organs could help someone else to live.

     

    It is not known exactly how many people's organs could have been used to save life if only they and their families had given consent.

     

    Putting your name on the NHS Organ Donor Register makes everyone aware of your wishes and makes it easier for them to agree to your donation.

     

    Millions of people carry donor cards or are on the register. Join them. The easiest way is to join online on NHS Organ Donation

     

    When you register it is important that you tell those closest to you about your decision. Even if your name is on the register, the person closest to you in life will be asked to confirm that you had not changed your mind. Putting your name on the register demonstrates your consent to the use of your organs for transplantation.

     

    Facing up to the death of a loved one is hard. Having to make a decision about organ donation, unsure what that person would have wanted can cause extra pain.

     

    Talk to your family now to make sure they know what you want.

     

    You will be sent a donor card when you join the Organ Donor Register, if you are already on the register but haven’t got a card you can request one by ringing the Organ Donor Line on 0300 123 23 23 between 7am and 11pm seven days a week. Calls are charged at your contracted rate for local calls.

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