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    SUPPORTING CHILDREN WITH CONGENITAL HEART DISEASE

    Support Groups

    Little Hearts Matter


     

    Little Hearts Matter offers support and information, and raises awareness of those affected when a child has only half a heart, due to conditions such as Hypoplastic Left Heart Syndrome (HLHS), Pulmonary Atresia, Tricuspid Atresia or Double Inlet Ventricle.

     




     

     

     

     

    Children's Heart Unit Fund

    A charity founded in 1979 by parent Ann Scott and was originally called the Lesley Ann Scott Memorial Fund. Ann started the charity after the death of her daughter Lesley Ann on the 10th February 1979. Lesley Ann was born with a congenital heart defect as was her sister and Ann’s first daughter Lisa, who sadly also died from the same heart related condition.

     



     

     

     


     

    HeartLineWe are a voluntary organisation set up to offer help and support to families of children with heart disorders regardless of how slight or severe the condition may be.


     

     

    We also would like to support "Children's Cardiac Unit", based at the University Hospital of Wales Cardiff, UK. The Children's Heart Unit for Wales was established in 1991 and it assesses and treats cardiac problems in the young (this includes babies in the womb and young adults with congential heart disease).

     

    Companies & groups who have supported Amelia Matters

    Click on the company name to visit their website

    St Pierre Country Club - With breathtaking views, 400 acres of picturesque parkland and a stunning 14th century manor, St. Pierre, a Marriott Hotel & Country Club is an idyllic retreat. Our resort, set in the rolling hills of South Wales, features the perfect blend of ancient architecture and modern amenities.

     

    The Dukes of Cymru- Based in Rogiet, which is situated between Caldicot and Undy and just 5 miles from Chepstow in South Wales, the Dukes of Cymru is a 3 piece band playing classics from the 60's onwards.
    All of the members of the band have either played professionally or semi professionally in the past and the current band was formed early in 2010.

     

    The Essence of Beauty - Beauty & Spa Treatments at Dewstow Golf Club and the Hilton Hotel in Newport.

     

    Deuawd Arddunol - is a versatile and experienced flute and piano duo based in South Wales.

     

    SOUL BABY - We're a nine piece Soul Band consisting of 4 female vocalists and a five piece backing band. We perform a variety of Soul and Motown covers from the 1960 right through to 2010 and from artists such as Aretha Franklin, Stevie Wonder, Christina Aguilera, Girls Aloud and many more!

     

    ND Signs & Son - We are a professional sign making Shop Banners & vehicle graphics business situated in the heart of West Wales which has been established for over 20

    years. 

     

    The Woodlands Tavern - The Woodlands Tavern is situated in the heart of the friendly chocolate box village of Llanvair Discoed, Monmouthshire, South Wales. Close to the Roman fortress town of Caerwent and set at the foot of Gray Hill, Wentwood forest and reservoir, the area is known for its historical interest and outstanding natural beauty. Call on 01633 400313 for bookings

     

    Wye Valley Studios - Wye Valley Studios are a multi-award winning photographic studio specialising in wedding and studio photography. Based in Caldicot, Monmouthsire, Wales. We have our own Professional Photographic Laboratory and Framing department. Wye Valley Studios have donated a family photo shoot and will be with us on the night taking pictures. Call on 01291 420368
     

    The Coach and Horses Inn is a 17th century Inn located in Caerwent, South Wales. Run by Rosalind & Kate, The Coach & Horses prides itself by providing traditional Welsh Ales, Locally sourced meat & vegetables in addition to bed & breakfast for those people who want a weekend break in South Wales. Tel: 01291 420 352 

     

    My Local Taxi - Mylocaltaxi.co.uk is a directory of taxi and private hire companies in the UK and are the proud sponsors of amelia-matters.org.uk by way of hosting the website and doing all updates and changes as required. 10 percent of all listing subscriptions on mylocaltaxi.co.uk directory will be donated to Amelia Matters charity.

     

    Liz Houghton Photography -  As a friend of two families with children with a CHD, I understand just how special every moment is to them, which is where I fit in as a Photographer. Capturing images to remember, just for fun or at a big event. It is always a privilege to work for charities and ‘give something back’. For further info please contact me on 0782 5758119 or at www.lizhoughton.co.uk  /Liz Houghton photography on facebook. 

    Reva hair Company, 16 Chepstow Road, Caldicot, 01291-423850

     

    Click here for Gala Ball 2013 Photo's by Liz Houghton - Additional photographs taken by Liz at the 2013 Gala Ball held on 9th February 2013

     

    Social Networking Sites

     

    Sarah Parker's Blog - Ti Amo, Sarah is Amelia's sister read her blog to learn about other Heart Families and their stories. Also catch up on Sarah's training for the 3 peaks in 2011.

     

    Amelia-Matters Twitter Feed - Get latest information about fundraising events straight to your mobile

     

    Little Hearts Matter - Read about the work of Little Hearts Matter on Facebook

     

    Other Groups & Organisations

    Organ Donor

     

     

    Would you take an organ if you needed one? Nearly everyone would. But only 28% of us have joined the Organ Donor Register.

    More than 10,000 people in the UK currently need a transplant. Of these, 1000 each year – that's three a day - will die waiting as there are not enough organs available.

    Please help us to turn people’s good intentions about organ donation into action by registering on the NHS Organ Donor Register.

     

     

    Blood Donor The Welsh Blood Service organises the collection, testing, processing and distribution of blood. We rely entirely on voluntary donors to maintain supplies to Welsh hospitals.

    We need to collect over 400 donations of blood everyday and demand has risen steadily over the last 10 years as medical techniques become evermore sophisticated.

    Anyone aged between 17 and 66, who weighs over 7st 12lbs (50kg), who is healthy and not subject to certain medical exclusions can volunteer to become a blood donor.

    In England or North Wales register with The National Blood Service

     

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